Jaxon's Letter - Christmas Wish 2019

Dear Mark

I am writing on behalf of Jaxon, a funny, always on the go little 4-year-old boy who is battling Acute Lymphoblastic Leukemia.Jaxon was diagnosed back in 2017 with his cancer and will remain on treatment for 3 total years. His treatment requires chemotherapy infusions, spinal taps, close monitoring for any infections, and lots and lots of oral chemo.Can you imagine teaching a 2 year old how to swallow a life-saving chemotherapy pill at home? Well, this family did and does each and every day.This last particular month has been extremely challenging for the family, Jaxon came for a routine visit and his blood levels were all extremely low.He had acquired 2 normal viruses that are present at this time of year in the community.His body struggled fighting them off & for an entire month he was unable to take his chemotherapy.Imagine the worry on this family’s heart knowing we were off schedule for his treatment – the roller coaster of a cancer journey is some days simply unbearable.

Jaxon and his family travel three hours each way to receive treatment at The Children’s Hospital Pediatric Hematology/Oncology outpatient clinic at Memorial.Unfortunately, the visits require a lot of gas money and take a toll on their vehicle, but the family always makes the most of their visits together.His mother, Dana, is a stay at home mother and is thankful for the ability to care for him to meet his needs.His father, Mickey, is in the military and comes to his visits when his schedule allows.Mickey has been deployed 3 different times during his treatment leaving Dana to manage the household, care for her children and ensure Jaxon’s medication plan stays on track.At times this all can be so isolating especially not having a support system where they live.You would never know it, though they all wear big smiles on their faces and just get the job done.

Jaxon’s mother was simply overwhelmed at being considered as a Wish Family.At times, cancer has been a very lonely journey for this family through deployments, managing Jaxon’s illness, and trying to keep things at home as “normal” as possible. Jaxon would love a Fisher Price DC Wayne Manor Batcave, trampoline, Legos, or anything superheroes, and nerf guns.His 8-year-old sister, Olivia, is quite the artist and would love art supplies such as canvases or paints.

Jaxon’s parents, Dana & Mickey, would love a night out to a Mexican or Italian with the family. They really enjoy being together & appreciate each and every opportunity they get to enjoy this.For Jaxon, a trip to Little Caesars for him is EVERYTHING!The family does the majority of their shopping at Wal-Mart – any gift cards would be a wonderful way to support them.

Jaxon’s cancer journey has taught this family that each and every day you should live fully in the moment, laugh as often as you can & that children are so much stronger than we can ever possibly imagine.Thank you so much from the bottom of our hearts to your listeners who support this campaign each and every year.You truly make a difference in our patients & families lives and we are ever so grateful.

Sincerely,

Amanda Crosby

Pediatric Oncology Nurse Navigator, Memorial Health

Dwaine & Cynthia Willett Children’s Hospital of Savannah

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